The CdLS Foundation UK & Ireland is part of a Federation of CdLS family support groups around the world

Mission

The groups have a common mission.

"The CdLS Foundation UK & Ireland is a family support organisation which exists to ensure early and accurate diagnosis of CdLS throughout the world, promoting research, and enabling individuals, families, friends and professionals make informed decisions and plan for the affected person’s present and future."

In the UK & Ireland the Foundation is run entirely by volunteers - including parents and professionals, plus a part-time Office Administrator. Trustees are elected, or re-elected at the AGM.

SEND Protct will be attending the cobference to meet all teh wonderful families. We will be elivering our flagship presentation: